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Speaker detail

  • Vanessa Ferreira
  • Head Patient Advocacy Europe
  • Santhera, Switzerland

Dr Vanessa Ferreira is responsible to work with European patients organisations at Santhera Pharmaceuticals. In her role, she brings her unique perspective of having been a rare disease advocate that founded a non-profit organisation. She has been a researcher, a lobbyist representing rare disease patients within patient organizations such as EURORDIS, and several years ago joined industry with the single goal of accelerating orphan medicines development from different angles. Dr Ferreira facilitates rare disease patient communities to connect supranationally, increases awareness with resources, helps identifying and sharing best practices transferable across countries and improves capacity-building of different patient groups.
Dr Ferreira has been deputy at the Health Parliament Portugal and participated in developing political solutions around the topic dedicated to the patient at the center of decision on the future of health in Portugal. All activities she has been developed from her belief that to improve rare disease patients and families lives, stakeholders need to be patient-centric in their thinking.
Dr Ferreira holds a PhD (Sc.D.) in Cell and Developmental Biology and an International MBA from IAE de Paris, Sorbonne Graduate Business School.