Hi I’m David and I was diagnosed with Parkinson’s Disease in 2011 when I was just 29. When I started out thinking about how I could contribute to the Parkinson’s community, I looked back to when I was first diagnosed and how lonely it felt – despite having family and friends around to support me. It was only when I got online and started sharing my journey, quite openly, that things began to change. When I came up with the hashtag #1in20parkinsons, I decided that I had to continue raising awareness and to encourage more people with the disease to get in touch and to engage with each other. It appears to be working so far! From regular Hangouts, our recent Twitter #ParkieChat, a daily dialogue and a steady stream of updates and shared information relating to progress in research, for example, #1in20parkinsons has become a functioning network of ‘active patients’ with around 40 members within our ‘One in Twenty Working Age’ circle alone. WE continue to grow, with some members now actively arranging online discussions and posting news items and other useful stuff online. I am proud of what 1in20Parkinsons.org.uk now represents! We are an active network of individuals making a real difference through patient engagement. www.1in20parkinsons.org.uk